By Margot Rudy DJ Diskokitty
Ever lose access to one of your social media profiles? It can be kind of frustrating. We don’t always think past how losing access to our profiles affects us until we see it through the eyes of someone like Danny. Danny has OI or Osteogenesis Imperfecta. It is a defect in the way his body creates collagen. In effect, his bones are literally as fragile as glass…if not more delicate. This also leads to problems breathing (the leading cause of death in this malady), thus leaving Danny to live his life in his bed connected to machines that help him breathe. There is no quick cure for this. Danny relies completely on his parents for any quality of life. Danny is 28 years old.
Despite being endlessly hooked up to wires and machines, Danny leads a pretty normal life. He enjoys a normal daily routine, has an education, spends time with his family and most surprisingly of all, Danny is a DJ! A real DJ and producer, he goes by the moniker Mizter Bonezz. “Bonezz” a play on words referring to his condition. He livestreams on the internet and writes music! Coming across his profile is a surprise. Admittedly, Danny is not that “standard” live-streamer, considering he is doing it from his bed. But he is energetic, happy, sings along, and engaging.
At one point in Danny’s treatment, Danny was intubated and lost his voice for an entire year. He said he was suicidal at that time and music (and cannabis -another article) is what gave him the will to push further. It is difficult to imagine the state of mind one must go through to not only be trapped in a delicate body, but to also not be able to cry out one’s needs. It is truly a test of one’s will. But Danny found a way to communicate and he found it with music. From then he regained strength in his vocal cords and is now able to speak… only for him to have his Facebook profile ripped from him just when he really started to have a voice.
Quite recently, Danny was hit with a DMCA violation on Facebook. For those who are unfamiliar, it is known as the Digital Millennium Copyright Act. A DMCA violation is a “penalty system used by online service providers against those who infringe on copyrights. Rather than banning an offender upon their first violation, the service provider will allow them a set number of violations (or “strikes”) before they remove the individual’s access to internet services” . https://www.whoishostingthis.com/resources/dmca/ Sept 22, 2020. One can lose access to, or the ability to use their account for a certain period of time, if not forever.
The consequence of Danny’s violation is he lost all access to his Facebook profile. That is 5000 followers that he lost. Is it his fault for playing music illegally after agreeing to the user agreement on Facebook? Yes. It also does not fall under any First Amendment protections. The problem is ethical. Facebook has literally become a way of life for many people and they use it solely to communicate with others, be it friends, family or fans. Many social media platforms are like this. People often have their favorite few platforms and communicate via those versus the personal phone call, text or email. Personally collecting 5000 fans from your bed is impossible except for “virtually”, which is just what Danny did!
Let me spell this out. Danny, a man who is living with a disease that confines him to bed, with round-the-clock care by machine and man, managed to amass a 5000+ following from his Facebook account… and then lost access to it. It’s not fair. Life is not fair. What we can do is level out the playing field a bit and work around these laws. DJs, livestreamers, Gamers (many gamers have also been hit with DMCA violations from music played in the background of many popular games) are all inventing new and creative ways to get around infractions (see Splitcast.net *coming soon*).
Until then, people like Danny Amaya or Mizter Bonezz, will have to rebuild their following. Unfortunately, Danny relies on this following to help support not only his dreams but assistance in his day-to-day living. Danny lost the social media page that helped him promote his GoFundMe. Danny needs help to build a new computer that will allow him to livestream. Simple tasks like going to the doctor’s office are large feats. A simple trip to the doctor could kill Danny. There is no room for error in Danny’s care. Let’s help Danny thrive.
For more information on Danny Amaya, AKA Mizter Bonezz’s GoFundMe go to: Click here for Danny